The Alzheimer’s Society has launched a new campaign #RightToKnow in a bid to support proper diagnosis of dementia.

According to the charity too many people are denied diagnosis, denied treatment, and denied the chance to plan for the future while still able to do so and that there is a desperate shortage of information for those following diagnosis.

The Independent reported today:

In a survey of nearly 400 people affected by dementia, the charity found one in five were given no information or support after diagnosis, while 90 per cent said they were “dissatisfied” with the amount of advice they received about their condition and support services. The charity also warned over diagnosis rates for dementia, which remain “unacceptably” low, despite small rises since David Cameron made improved dementia diagnosis a priority two years ago.Jeremy Hughes, chief executive of the Alzheimer’s Society, said that being diagnosed with dementia without support from health and care services was like “entering a maze blindfolded”.

“Too many people are left without a guiding hand to help them come to terms with this debilitating, terminal condition,” he said. “The Government has shown clear commitment to improving the lives of people with dementia and action is under way to improve diagnosis rates. However, we cannot escape the lack of support following a diagnosis which leaves vulnerable people adrift.” He said that the Government should guarantee a dementia advisor – a named professional contact – to any patient diagnosed with the disease, to help them come to terms with the news and advise them on the care services they may now need.

The Alzheimer’s Society’s new campaign has been launched to support those that have been diagnosed with Dementia and have a #RightToKnow about the condition, how to tackle it and what advice and information is available to help them. The charity is asking for people to sign up and support the campaign. There is more information here 


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